TY  - BOOK
AU  - Widdows,Heather
AU  - Mullen,Caroline
TI  - The governance of genetic information: who decides? 
T2  - Cambridge law, medicine, and ethics
SN  - 9780521509916 (hardback : alk. paper)
PY  - 2009///
CY  - Cambridge, UK
PB  - Cambridge University Press
KW  - Genetic screening
KW  - Moral and ethical aspects
KW  - Government policy
KW  - Privacy, Right of
KW  - Medical records
KW  - Access control
N1  - Includes bibliographical references and index; The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Sren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches; Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange
ER  -