The governance of genetic information : who decides? - Widdows, Heather, 1972-; Mullen, Caroline (Cambridge, UK : Cambridge University Press, 2009)
The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Sren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.
Includes bibliographical references and index.
Keywords: Genetic screening -- Moral and ethical aspects; Genetic screening -- Government policy; Privacy, Right of; Medical records -- Access control