The governance of genetic information : who decides? / edited by Heather Widdows and Caroline Mullen. - Cambridge, UK : Cambridge University Press, 2009. - xi, 235 p. ; 24 cm. - Cambridge law, medicine, and ethics . - Cambridge law, medicine, and ethics. .

Includes bibliographical references and index.

The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Sren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.

9780521509916 (hardback : alk. paper) RM282.80 0521509912 (hardback : alk. paper)


Genetic screening--Moral and ethical aspects.
Genetic screening--Government policy.
Privacy, Right of.
Medical records--Access control.