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The governance of genetic information : who decides? / edited by Heather Widdows and Caroline Mullen.

Contributor(s): Series: Cambridge law, medicine, and ethicsPublication details: Cambridge, UK : Cambridge University Press, 2009.Description: xi, 235 p. ; 24 cmISBN:
  • 9780521509916 (hardback : alk. paper)
  • 0521509912 (hardback : alk. paper)
Subject(s):
Contents:
The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Sren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.
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Holdings
Item type Current library Home library Call number Materials specified Copy number Status Date due Barcode
AM PERPUSTAKAAN UNDANG-UNDANG PERPUSTAKAAN UNDANG-UNDANG KOLEKSI AM-P. UNDANG-UNDANG C73.8.G697 2 (Browse shelf(Opens below)) 1 Available 00001516963

Includes bibliographical references and index.

The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Sren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.

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